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Kari Luther and Sharifah Hardie interview

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Kari Luther and Sharifah Hardie interview

Kari Luther Rosbeck, President & Chief Executive Officer, Tuberous Sclerosis Alliance

Kari joined the TS Alliance in June 2001 and became President and CEO in November 2007. She has been involved in nonprofit fundraising and volunteer management for more than 30 years. During Kari’s tenure as President & CEO, the TS Alliance established a comprehensive research program fostering collaboration with industry and academia to move treatments for TSC forward in a more expedited way. The Unlock the Cure research strategy focuses on key points along the drug discovery path and has also served as a capital fundraising campaign with more than $12 million raised for TSC research since August 2011. She developed and implemented a vast national network of more than 30 volunteer branches called Community Alliances; increased volunteer participation from 90 individuals to more than 2,000; and through her involvement in special events and major gift fundraising, helped increase the annual revenue by more than 50%. Kari graduated with a BA degree in Theatre from the State University of New York at Albany and upon graduation founded a theatre company with fellow graduates in New York, NY. After the loss of her first child, Noell, to sudden infant death, she dedicated her career to helping other families.

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